Controlling What You Can

As you all know, since we are struggling with COVID-19 restrictions, adaption is needed at times but can be a mental hurdle.

I am home or I am at appointments. Sleeping and napping a lot. Recovering. Essentials only.

I met with a different radiologist/oncologist every day last week. With my family, I chose the one who was the most aggressive and had the best technology to fit my health needs.

“Malignant” and “cancer” were new words I heard last week from all physicians. I was told benign previously but a new perspective into the pathology report called for new diagnosis.

My meningioma invaded the lining, dura, of my brain. If it was not caught when it was it would have infiltrated my brain.

I am thankful.

If I do not get radiation therapy, I have a 100% chance of this tumor growing back over my lifetime and a 60% chance of this tumor growing back in 5 years. Therefore, they are all considering it malignant.

The unknown is still inevitable. I will not know my exact radiation treatment plan until the preplanning period is over. I need multiple tests and a face mask created in advance.

This process has already started. However, I have a five hour appointment on Tuesday to finish the rest of the tests.

Side effects you ask? For sure I will have fatigue and hair loss. However, all other side effects I will not know until the preplanning stage is over per my radiologist/oncologist.

I am focusing on what I can control. Such as my hair. My friend is cutting and shaving my hair tomorrow, Friday 12/18.

Waiting in many appointments, now alone due to COVID-19.

I’ve lost count of the endless appointments.

Learning to be okay not driving. My Dad thankfully is there for all appointments. Even if it’s just waiting in the car for me.

My health. Controlling my water intake and make sure I’m eating when my body requests food. My skincare routine. Controllable actions.

FaceTiming with my friends. Who I love.

Spending time with my pets. Who all love to cuddle (sometimes too much).

Waking up early to see a sun rise so my nap can be longer after appointments.

I cannot fixate on the unknown. I just need to continue to prepare myself for anything life may continue to throw at me. That is one thing I can control, my positive outlook.

The good. The bad and the ugly. I’m excited to see and show you my hair tomorrow!

Stay safe friends & mask up.

Be bold.

One response to “Controlling What You Can”

  1. I’m glad you have so much support surrounding you. The rest like me are sending love and positive vibes from across the country.

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